A message from The Hemophilia Center at OHSU

Letter to the Community on COVID-19

A message from The Hemophilia Center at OHSU

“This (this pandemic, this social distancing, this re-organizing, this not working, this not attending school, this finding groceries, this finding toilet paper, this finding childcare, this everything) is hard. But, we can do hard things. We are confident in that – we have seen it and continue to see it every day as the hospitals and clinics prepare and plan, as our team shifts our work to keep one another safe, as you adapt your lives. We are grateful for each one of you, and we are so grateful to be a part of this community. We are here for you – to help with your bleeding and clotting concerns, to help get your medicine, to listen when you just need to talk, to help identify resources – and you are here for us – to tell us how you are doing, to keep us posted on the amazing things you are doing despite the circumstances, to keep us on our toes to creatively problem solve in the midst of a pandemic. So, thank you for answering our calls and reaching out. It’s good to hear from you. We will draw upon our collective experiences, our collective knowledge, our collective wisdom, and our collective spirit and keep going together. We can do hard things. Together. ”

We are thinking of you and how HFO and the The Hemophilia Center at OHSU can best support you. Our primary concern is the well being of the members of our community.

For the safety of our community and staff, HFO will be working remotely. Our staff will continue to be available.
Even as we find ourselves working from home, know that we continue to be here for you.
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HFO Spring Events:

All HFO events until June 1 are on hold. More information will be provided if we are able to re-schedule these events. The following events are now canceled or postponed:

  • 27 March – Southern Oregon Connections
  • 2-5 April – YETI (Youth Effectively Transitioning to Independence)
  • 18 April – Blood Brotherhood
  • 24 April – Southern Oregon Connections
  • 2 May – Hispanic Connections (Cinco de Mayo)
  • 3 May – Eugene Connections
  • 3 May – Portland Connections

 

HFO Summer Events:

Information is changing on a daily basis, we will continue to keep you informed via email and social media.

Camp Applications:

Registration for Camp Tapawingo will be delayed until 15 April 2020 to reassess our plans for events later this summer.

The Hemophilia Center at OHSU:

All non-urgent clinics at The Hemophilia Center are canceled through the end of April, 2020 to slow the spread of the virus and decrease exposures. This will be re-evaluated at the end of March as well as in mid-April to see if this plan requires modifications. The Hemophilia Center is still available for urgent needs in-person or over the phone, and for non-urgent needs over the phone.

If you have questions about your health insurance, or if you are in danger of losing your health insurance coverage, please contact The Hemophilia Center at OHSU – 503-494-8716

Emergency Assistance:

The current HFO Patient Assistance program provides assistance with bleeding disorder related medical expenses. The HFO Board of Directors and the staff at The Hemophilia Center at OHSU are looking at ways for the current scope of the program to broadened. If you have financial needs that have come about because of COVID-19, please reach out to HFO or The Hemophilia Center at OHSU so we can determine the best approach to take in expanding the patient assistance efforts.

Resources and the most up-to-date information:

CDC:
Medication Supply:
We are closely monitoring this situation. We encourage all patients to look to the CDC, NHF, FDA and HFA for reliable and up-to-date information.
If you have questions about your supply of factor and the additional supplies, please contact your factor provider.
Updates from other organizations and partners:
Hemophilia Federation of America (HFA):
National Hemophilia Foundation (NHF)

 

Mental Health:

Donations:

All donations received will help sustain HFO programs and services as we continue to serve the bleeding disorders community of Oregon.

Wishing you good health!

Hemophilia Foundation of Oregon (HFO) is a non-profit 501(c)(3) organization incorporated in 1963 to enhance the quality of life for individuals with bleeding disorders and their families through
advocacy, assistance, outreach, education and research support.
All information shared with HFO will remain confidential and will never
be shared with an individual or organization.
© 2020 Hemophilia Foundation of Oregon